I had wondered why my initial instructions for my journey with Can-Seer advised to bring a friend to take notes, because, even tho the initial appointment was long and they did throw a lot of information out at me, I retained it all. There should be an emphasis on bringing your note taker to the biopsy results appointment. It is actually a funny thing to witness your own mind crumbling.
I had my first follow-up appointment from Surgery on the 29th, yesterday, Dec 5th. My Doc (PA) checked my two incision sites and was very happy to see how well I was healing. I have been watching the intense infusion of energy coming into me, I would have been shocked if my body wasn’t healing well. Then she asked if I received the biopsy results yet, it was really the only reason I was there in her office. Not yet… she went to go get them.
It is funny how the mind can completely hide what you don’t want to look at. Before my lymph node / wide incision surgery, I already had a sit down with my spiritual team and was assured they would find more cancer within me. I so forgot about that conversation.
When my doc came back into the room toting paper work with all my biopsy results on it, I flashed her a smile and said “I am all clear, right.” She looked at me and simply stated “It is what it is.” In was in that moment I witnessed my own mind shifting…. away.
I also realize, it is for these conversations, a note taker is really important. Her words started to blur in my mind’s eye when she said they found a tumor in one of my lymph nodes. Why does the word tumor sound so much more daunting than saying they found cancer cells in my lymph nodes? A google search would (later) help me understand that.?
She did give me good news, I had 7 lymph nodes biopsied (they pulled a small piece off of 7 different lymph nodes) and only one came back with a tumor. Yay?
She talked about my original pathology report, stating something I had already understood… the original “levels” may be off because the tumor that was removed from my back went all the way to the very end of the thingie that was taken off my back. So my Clarks level 4, Breslow level 3 could have very well been deeper and thicker. But because of the healing/scaring that was already taken place (the original tumor was removed Oct. 25th) when they did the wide excision biopsy, it all disintegrated upon removal. But the new, updated pathology states, it was probably deeper than stated. But because we will never know exactly how deep or how thick the orginal tumor was, we stick with the original staging: t3b (T= tumor, 3 equals breslows thickness level 3 (3.2cm to be exact) and b = ulcerated.)
She did remind me, in this original pathology report review, that the thingie on my back was ulcerated. Yup, I researched what that means to the point, I will not forget.
So she said something I really didn’t understand, nor ask more about in that moment. The tumor they found in my lymph node was visible without staining. By this time, my mind was elsewhere, it felt like it took a much-needed vacation.
She then wrote the next part of my “staging” on my pathology reports: N1b which I didn’t even look at till I got home. In all my previous research, I got the n1 (n=node and the 1= amount of nodes biopsied with cancer in them) the b confused me. I don’t think I payed much attention to that until it was written on my paper. Thank god for google (smile) b- means macrometastasis… what the hell does that mean? The a would have been the mirco, well, now I know. The b means the tumor within the lymph node is visible to the naked eye. The micro would have meant you needed to stain it or see it with a microscope.
This automatically puts me into a cancer Stage IIIb category The last part of this dance comes up Friday when I have my PET/CT scan done. I cannot tell you how much it still breaks my heart that the hospital canceled my original PET scan date of the 28th because I had no ability to answer the phone. It feels like such cruel and unusual punishment for something, I have zero control over (my cell signal.) Now I have to sit and wonder about this last part of my staging until Monday, otherwise the whole view of my entire body would have been known yesterday. Freakin rip the band-aide off in one full swoop. In the words of my doc, it is what it is.
I paid very close attention to the numbers of yesterday. It was Dec 5th, a day of change. My intake window upon arrival at my doctors was window number 5. I knew right then, they were going to tell me they found more cancer.
When my doc started talking about survivability rates for the next 5 years, I was at 55% without the PET scan figuring into the final staging of this. If the PET scan finds any other cancer in my body at all, I go into the group known as Stage four and my 5 year survivablity plummets to less than 20%. Of course, these are all just figures and statistics, but right now, it is what my mind is chewing on.
Five is the number of change. It is my life path number, it is the number LISA reduces to a 5 in numerology. I was being presented with so many 5’s in one day that I really just wanted to puke.
Then of course, the conversation naturally progressed to treatment. The first thing, more surgery. This time, they want to remove ALL my lymph nodes from the right half of my back (around the original tumor site) to my right arm pit, and even cut into my pectoralis and remove my lymph nodes from under the front of me. She did say it will take more recovery time than the 9 inch gash currently across my back. Then they want to start me in clinical trials, injecting some sort of localized chemo or something.
I just stopped her, I am not doing a damn thing more until I come back from Christmas vacation. Period. I can’t even process any of it today anywayz. I watched her face grimace when I told her I will be back in NM Jan. 3rd.
It’s funny, sorta, it is a feeling of a boxer in a ring. You can see the upper cut coming, yet, it still leaves you disoriented when it impacts your head. That is very much what it felt like getting the news yesterday. I knew it was coming, yet, for as prepared as I was, it still leaves a dizzying sting.
I suppose, what I never even thought about beyond the news of the cancer spreading, was what it would mean to my life… namely, my financial/work life. It was all I could think of on the ninety minute ride home… well, that and my up coming PET scan.
I did ask my doc what would happen if my PET scan showed other cancer in my body, but of course, more biopsies. Blah!! No more cutting this year! Instead, I listened to the 20 links that came to my email concerning help oil. I invested in that and will start taking them (gel caps) tomorrow when they arrive in my mail!
It almost seems kind of crazy, but I am so OK with this whole cancer dance. I know I will be a good listener and we have something to do together and thru it, we will serve the greater good. It’s the down time that has me most concerned. It is funny, no matter our choices in life, there is a domino impact on any given choice. IF I choose surgeries next year, my down time will affect my landlady, the birds in the yard, my own ability to keep and maintain a roof over my head. If I choose to do nothing except take hemp oil and meditate, my children will have a melt and I just might not be around long enough to see my grandson play soccer or whatever his interest will be as he grows.
Of course, I am already paying the hefty price for doing nothing and I am not willing to bear that again.
I am just so grateful I put Christmas money away, which will cover my December bills and January will just have to take care of itself for now. As I hear my loving spiritual team echo a sentence they said a few weeks ago in a reading “don’t worry about a future that has not arrived yet.”
I am so grateful I am walking this path with sooooo many loving hearts, loving hands to hold me steady on days like today, when the upper cut is still stinging my face. This too shall pass!!
I love you all, so much, and am grateful for your loving joy that fills my air space!!
((((HUGZ)))) filled with loving gratitude!!
Lisa Gawlas